Email Notification

If you want to try to "follow by email," try the email subscribe box at the very bottom of this blog. It's been temperamental - but if it works, you'll get an email from "BuzzFeed" asking you to confirm that you want to follow.

Wednesday, July 20, 2016

Done!

Today was my final radiation treatment. Woo hoo!!!

I knew they had a little "ring the bell" ceremony at the treatment center for "finishers" - but I was surprised by the confetti and cheers of the technicians - plus Jon, of course!


And as you can see, they gave me a certificate which said I completed the course of radiation therapy "with the highest degree of courage, determination, and good nature." (Of course I'm the only one they say that to - ha!)

I got teary, which sort of surprised me. I guess I've been in my head more, thinking, "Only a few more days of this and then it's off my schedule" but today the emotional reality hit. What a gift to have this treatment done and now be on my way.

From here on out, it's just checkups to make sure all the "C" stuff is staying away. 

HUGE THANKS to you for your love, prayers, encouragement, support, listening ears and helping hands. It's been a team effort and I'm so, so grateful.

Loving you,
Jude

Wednesday, July 6, 2016

Past the Halfway Mark

Really nothing to report except that I've now had over half of the radiation treatments. No real side effects yet - they keep telling me those are cumulative and more likely to show up during this "second half," but we'll see.

The finish line is in sight :-) I'm still so grateful for all of your faithful prayers and concerns. I've never felt alone in this.

Wednesday, June 29, 2016

Becoming Radiant!

I'm happy to report that there's not much to report other than that I've had 7 of 20 radiation treatments, and so far everything is super easy with no side effects.

Here's a picture of "the machine."


The appendages on the big silver ring rotate around while I'm lying on the "comfy" (not!) black plastic bed. On top is the one that delivers the radiation in short bursts with an accompanying beep - it takes less than 2 minutes. It rotates to one side and then about 180 degrees the other direction to zap me from both sides.

I don't know what the protuberance on the right does, and the one on the left (and the bottom one?) are X-ray imaging devices. I'll have to ask a few more questions.

So that's it! Have a great 4th of July weekend :-)

Tuesday, June 21, 2016

Having a "Rad" Birthday!

This year I'm celebrating my birthday by starting four weeks of radiation treatments. I've been saying I'm "celebrating life" that way. Some clever friends wished me a "rad" birthday, and others assured me that I'll be looking radiant. Ha!

Today's session was just a bit longer than it will usually be but even at that, it was quite short. Essentially I lie down on my back on a lovely hard plastic "bed" and stay still while a machine beeps and radiates. They had to do a couple of other extra things today but I think the treatment itself was only 4 minutes - super short!

Whatever side effects I might get are cumulative - possibles include some redness, some fatigue, etc. I'm "planning" on having minimal side effects - we'll see how that works out :-)

A memorable birthday indeed. THANKS so much to all who have sent birthday greetings my way. Warms my heart and makes me smile!!

Tuesday, June 7, 2016

All tatted up!

Got my first-ever tattoos today - but nothing fancy. Just little dots so the radiologists can always position me correctly for my upcoming radiation treatments.

Everything has been healing up WAY better than after the first surgery, so we're finally ready for this last phase. Today was a CT scan (they want to make sure where all my vital organs are so they don't hit those!), plus the tattoos and scheduling the first treatment, which will be on my birthday, June 21. A memorable B-day to be sure! Then I'll have a total of 20 treatments, on weekdays, so I'll be done in mid-July - which makes it possible for me to go on my annual Kenya mission trip with Kizimani - woo hoo! I've been thinking that I would probably be able to go, but wanted this final assurance before I started raising funds and booking my ticket.

Got to start celebrating my birthday tonight with some dear friends with a picnic up in the Rose Garden - perfect! Every bush was bursting with flowers and the smell was heavenly.






Friday, May 27, 2016

Forward ho!

Back from our weekend at Wild Canyon Games, and I was able to go "all out." I was tired at the end, but then we always are :-)

A quick update on what my medical oncologist said just before I headed over to Central Oregon for the Games. He agreed that though he's not a surgeon, it didn't seem to make a lot of sense to do surgery when there was nothing specific to aim for. He confirmed that radiation should take care of any cancer cells we can't see.

Next step - meet with Dr. P, the radiologist, on June 6 for a CT scan and simulation. I'll know more about what all that involves when I do it, and then we can start scheduling radiation treatments. I'm thinking June will be "radiation month" this year.

Tuesday, May 17, 2016

Clearing up some confusion

We met with the surgeon today - partly as a followup to last week's surgery, but also as an opportunity to get some clarity on what the tumor board said, and why what I was hearing from the nurse navigator seemed so different.

Everything is healing up much better than last time - hooray! Plus she had taken just a little bit of skin around the incision both for better healing and to have pathology done on it - and there was no trace of cancer - not that we were expecting any but it's good to check. She said it's ok to resume normal activities, and I should be able to start radiation in another 3 weeks.

We now feel like we understand much more what the tumor board was saying. For one thing, they had no conversation about the dratted spots, because they couldn't see them on the most recent MRI. We'll call that good news :-)

What Dr. D told us was that there are a couple of governing bodies in the area of breast cancer treatment which look at thousands of cases to come up with recommendations and "standards of care." Post surgery, you always want to hear that there were clear margins - that they got all of the tumor and just a little more besides. Over the years, the standard of what a margin is has changed. It used to be 5mm, then 2mm, then 1mm. Now it is "no ink." The tumor and surrounding tissue is rolled in a special ink so that the outer edges can be seen under a microscope. If the tumor doesn't touch the ink, you're "clear." The margin for the tumor was 2mm; the margin for the DCIS was .5mm (DCIS is not cancer but sometimes is pre-cancer. It was around the tumor and that's why she took out more than we might have originally thought - she knew it was "not quite right.")

So the debate was essentially between the docs who said, "Yep, that's right." and the ones saying, "I'd be happier with a bigger margin." Given that it was obvious she was going to have to go in and clean out the hematoma anyway, there were a lot of people saying, "Since you're going in anyway, take out more in the tumor area as a diagnostic procedure." But others were saying, "The reason we do radiation after lumpectomies is to deal with what we can't see. We're not seeing anything on the images, so the radiation will handle it just fine."

Part of my confusion and fear was that when Dr. D last told me about the tumor board findings, it was all new and surprising info. So when I called the nurse navigator to get some clarification, she was reporting to me the fact that a lot of docs were supporting the "since you're going in anyway" scenario.  But Dr. D was reading those docs as saying, "Well, we don't know for sure, but new and bigger margins are a way we could be sure." They weren't saying it as a "have to."

So I'm breathing easier. I'll meet with my oncologist on Thursday as (hopefully!) an extra confirmation that I can continue on with the plan we'd developed for radiation along with other tests and meds. I won't be able to post on the blog right after that because I'll be heading to Wild Canyon Games for the weekend, so I won't have time or, more crucially, internet access!

I know this is long already but I just have to add this in. A few years back, I had two friends going through kidney surgeries. The first one had been given an adorable "plush" kidney - a little pillow shaped like a kidney, so I got one for my second friend, Rick. When he heard of my diagnosis, guess what he ordered for me?
He actually ordered it months ago from an Etsy site, and the apologetic letter that came with it was hysterical. She said she was sorry for the delay in about as many ways as it's possible to apologize. So our new catch phrase in that group is, "I'm so sorry. I can't apologize enough for how sorry I am..."


Tuesday, May 10, 2016

Surgery #2

It was strange to be walking back into the Short Stay unit almost a month after my previous surgery. We had the same escort who took us back there, which added to the deja vu.

As promised, everything happened speedily. Here I am modeling the lovely paper hospital gown:

I like the purple color. But of course one friend noted the "bear paw" logo and wondered if Jon had bought me to a veterinary hospital. Another thing that's pretty jazzy about this ensemble is there are "pockets" built in which can be connected to an air hose that pumps in hot air (or cold air I guess, if that's what you want) and I made use of that after surgery. Mmmmm - toasty warm!

I'm also modeling a "bracelet" that keeps track of where I am in the hospital, just in case they lost track of me. I guess that's reassuring.

Both the surgeon and anesthesiologist came in and chatted with us beforehand. This time the anesthetic was what you get for a colonoscopy so there was no tube stuck down my throat and you come out of it more quickly and easily. They woke me up while I was still in the surgery (AFTER the procedure was done, thankfully!) and they didn't even have to take me to the recovery room. The woman who "drove" my wheelchair to the entrance when I was discharged commented a couple of times about how early I was getting out, as did the woman checking me out of Short Stay. Overachiever, that's me!

So back to "recovery mode." I just snoozed and watched TV yesterday, plus one business phone call. Today I took my time getting started on the day, then took my laptop out on the deck to catchup on email and a few things. It was a perfect spring day in Portland - mid 70s, clear blue sky, birds singing and swooping through the yard. Overall, I feel good - just occasional little aches.

I have to admit I was pretty shaken over the weekend. Going back in for surgery felt like a step backwards, and having the tumor board be split on their recommendation muddied the waters that have been relatively clear for me lately. Then my nurse navigator (my usual "go to" with any questions and a helper in setting next steps) was saying things about the tumor board which seemed different from what the surgeon told me, which was unsettling to say the least. I'm still sort of unnerved by that, but next week I'll be seeing both my surgeon and my oncologist, armed with a list of questions, as always!

Thursday, May 5, 2016

A byway on the detour...

One appointment with the surgeon - two big pieces of info to absorb.

Her first words to us were, "Well, you split the tumor board." When you're looking for clarity, that's pretty much the opposite of what you want to hear. I was (naively!) hoping that all the tumor board members would be in agreement. But on the other hand, it does affirm that it was a good move for her to take my case to that smart group of cancer professionals.

Basically, it's impossible to say for sure, based on the imaging (mammograms, ultrasounds and MRIs) that there is anything cancerous that can be surgically removed. So essentially one half of the group said, "Radiation is our tool to get rid of what we can't see, there are excellent success rates from that, so that's the course of action we recommend." The other half said, "You could go back in for diagnostic surgery to be sure." 

As I told the surgeon, my philosophy about is, "less is more." She agreed that there is such a thing as too much surgery. She also said it's good to think about for awhile - would I regret not doing the diagnostic surgery if cancer did recur? And she encouraged me to get a second opinion if I wanted. Jon and I are thinking it would be good to talk with our medical oncologist about it - see what his take is on it.

So that's one thing. The other is a hematoma, which is basically a collection of blood cells at the surgical site. It had seemed weird to me that the bruising and swelling hadn't changed for so long, and we had an appointment with her last week to see what was going on. She looked at it, said it was a hematoma, hopefully it would go down on its own and we'd look at it again in about a week (today). But after hearing about the dramatic "bloodletting" on Tuesday, and after checking it today, she scheduled me to come in early on Monday morning (moving all her other surgeries a half hour later) to just clean all that out and stitch me up again. It would eventually dissipate on its own, but would take a long time, and we need to get radiation treatments started. Also, she can't just aspirate it because though there are some "liquid" cells, there's some that are sort of jellied - blech!

So this isn't wildly scary - just not the norm (I'm special!) Dr. D explained how she always makes sure the site is "dry" before she starts stitching, by cauterizing all the incoming vessels, so it's hard to say why I have these blood cells that don't want to move along.

Whew! I'm sorta down about all this but I feel perfectly healthy in all other respects. You know what to do, prayer warriors! Thanks, thanks and ever thanks!

Wednesday, May 4, 2016

Waiting - not my favorite word

I had hoped to get radiation treatments set up today at the radiologist's office, but guess what? A bit more waiting is on the agenda instead.

I've been impatiently waiting for the bruising and swelling to go down, and it really hadn't seemed to change much in the last week and a half or so. But the swelling just went down in a dramatic way today. I was making my way to the shower this morning when Jon said, "You're bleeding!" I looked down at my feet and legs - didn't see anything. (Morning is not my brightest time.) "No, your front!" he said. The front of my nightgown was covered in blood, as if I was the victim of a a stabbing. Wow!

After the initial shock, and seeing that it was not bright red, I realized it's sort of good news. My surgeon had said that the swelling was old blood cells that hadn't gotten carried off yet, so for whatever reason during the night, a pathway through the top part of the incision opened up and a bunch of blood dissipated that way.

I did meet with the radiologist as scheduled, he assured me that it's all OK, but we'll need to wait (there's that word again!) a bit more until that's healed up. It's the right decision of course, but the scheduling part of my brain wants to get some dates on the calendar!

Thursday my surgeon meets with the tumor board and then we meet with her in the afternoon. I'd appreciate prayers that they discern a clear way forward about those dratted spots. Thanks!

Thursday, April 28, 2016

Confirmation

Appointment with Dr. A
When I got the good news about my 2% test result (see last blog post), I trumpeted it to the world, saying, "I'm not going to do chemo!" Cautious Jon said, "Well you haven't talked with your medical oncologist yet." True, I hadn't. But we did talk with him today, and even better than him saying, "Sure, that's your choice," he said, "No chemo for you!" Super great to have him say that so emphatically.

What gave him such confidence was that wonderful 2% number. There's another tool/study (SO many of them, and I'm grateful for every single one of them!) which looks at the tumor pathology and creates a PEPI score, which predicts the risk of breast cancer coming back. Dr. A said, "With this one, you don't want points." The cutoff to start accumulating points is anything above 2.7%, so since I have that lovely 2%, that gives me a grand total of zero points! Can't get better than that.

As is usual in our appointment with Dr. A, he threw a ton of info our way. In brief:

 - bone loss is a potential side effect of taking the anti-estrogen med, plus there are studies (more studies!) showing that since breast cancer tumor cells like to migrate to bones, treatments to forestall tumors there can significantly cut risks for cancer recurrence in the breast or in the bone or liver or kidney. Consequently, I'll be doing an IV treatment of Zometa every 6 months for the next 3 years. Plus he'll be checking my Vitamin D levels every time I go in - every 3 months. Obviously more doctor's appointments in my future! That's not even counting annual mammograms and MRIs.

 - there's also a blood tumor marker test he'll be doing. It's not yet "standard of care" but could give us a jump on diagnostics if some cancer decided to return. Quite honestly, I can't remember how often that will happen - perhaps it will be a blood test when I have an appointment with him every 3 months.

Patient Education Summit
A friend and I went to a Patient Education Summit for most of the day last Saturday, which was very good. There was a wide variety of speakers, from doctors to insurance reps to naturopaths to cancer survivors (I'm "supposed" to be calling myself that - but it feels a bit, I don't know, overly dramatic for my situation). I learned a lot, was sometimes laughing and sometimes teary, and time went by quickly. A few nuggets from that:

 - from a doctor - "...and there's the patients who consult Dr. Google..."

 - Suleika Jaouad, the keynote speaker, was powerful. She writes a column for the NY Times called, "Life, Interrupted" which she started while in a bone marrow transplant unit, undergoing some pretty drastic treatments.

 - a wife's response when her husband told her of his Stage 4 diagnosis - "You're in deep tapioca!"

- April 16th is National Health Care Decisions Day. Oh my. We really do have an "official day" for everything now, don't we?

Status Report
Overall I'm feeling very good. Still impatiently waiting for the final bruising and swelling to go down, but pretty much back to normal in every other respect.

Next week:
    Monday - MRI (not the icky needle one)
    Wednesday - meet with radiology team for "simulation" (get me set up for treatments)
    Thursday - Dr D, my surgeon, shows my reports and images to the tumor board to get input about those dratted spots that we still haven't gotten final consensus on
    Thursday - meet with Dr. D to see what the tumor board recommends

Grateful
It's a key word for me these days. Hearing some people's stories at the Summit - "I've had 2 major surgeries, 7 hospitalizations, 57 chemo infusions, 28 radiation treatments, 4 day surgeries, 7 procedures, 5 ER visits, 21 prescriptions and 4 specialists" (this from the woman who organized the conference) - confirms that though I've been experiencing "the big C," I've only dipped my little toe in that ocean.

Another example. A couple of the speakers at the Summit said that when they were diagnosed, some friends they thought would be supportive had backed away, while other people they hadn't felt as close to really stepped into the fray. I couldn't relate to that at all. Every single one of you have jumped into this "detour" with me in a big way. I'm overwhelmed with your love and care. And so grateful.

Tuesday, April 19, 2016

2% - A Wonderful Number

Just got the results of the test we were waiting for. And the number 2% means that I've decided not to have chemo. Big sigh of relief and lots of joy!

A numerical recap, if you want more details. Among the many test results we received about the biopsy, one was the fact that the tumor was 100% estrogen-receptor positive; in other words, it feeds on estrogen. Just one week after the biopsy, Dr. J (the surgeon who is out of our network) saw that result and said, "Let's start you on anti-estrogen meds now." That's not the norm, but it made a lot of sense and my medical oncologist said, "Sure. Go for it."

Another result was the the Oncotype DX test which is a fairly recent test that oncologists now use to help determine whether or not to do chemo. This is the test where I fell in the hazy middle ground. 17 and below is "no chemo for you!" and 31 and above is, "Yep, you gotta do it!" My number was 21 - just enough to say, "Well, it could be helpful - we don't know for sure." Stats are "13% chance of recurrence if you don't do chemo; 9% chance if you do." Your choice.

As we talked about those numbers with Dr. A, the medical oncologist, I confessed my indecision, and my preference for no chemo. Then I asked a "what if?" question. One other test was the "proliferation rate" (division rate) of the tumor cells. From the biopsy, 24% of the cells were dividing, which is a high rate. It was the worst number of all my results. But the cells were 100% receptive to estrogen, which I was cutting out of their diet, so what if that rate went down between the biopsy report and the pathology report after surgery? Would that be helpful information with which to make my decision? Dr. A agreed.

For the rate to change from 24% to 2% is more change than I even dreamed of. I'm realizing now that I hadn't ever put a number on it, but I think I was vaguely feeling that if it moved down into the teens, that would seem pretty positive. So a low single digit is amazing!!

Now the organizing part of my brain wants to kick into gear and get radiation scheduled so I can get other things planned. I've got Wild Canyon Games coming up in about a month, Memorial Day Weekend, a job in Boise on June 11, my brother's wedding on June 18 and of course Kenya in August. From our previous conversation with the radiologist, I think we'll be able to work that all out.

You can still keep praying. I do have an MRI coming up and then my surgeon is going to take all my records to a tumor board to see what they think about those "probably-benign-but-we-don't-know-for-sure spots." Hopefully those will be fading away too without their precious estrogen...

Tuesday, April 12, 2016

The Waiting Game

We met with the surgeon today and got the pathology report.  Nothing scary but nothing definitive either.

 - the chunk she took out was bigger than I thought it would be - about 4 x 4 x 3 cm.

 - besides the type of cancer that we knew I had from the biopsy (invasive or infiltrating ductal carcinoma) they also found DCIS - ductal carcinoma in situ - which means cancer inside a duct. Hmm - I'm still learning about all this. I think carcinomas can start inside ducts, and some break out but some don't, so there is debate as to whether to call them "pre-cancer" or "non-invasive," and about how aggressively to treat them. Will have to learn more.

 - because of the "new" cancer they found in the tumor, I'll go in for another MRI (NOT the needle biopsy one, thank goodness!!!!). But because of all the bruising I've experienced (not what she usually sees but our family has always bruised easily and colorfully), we need to wait a few weeks for that to get back to normal.

 - once we have the MRI results, the surgeon will take my case to a consulting group (comprised of oncologists, surgeons, radiologists, etc.) and see what that team recommends about next steps. Should we go after those "spots" that radiologists have different opinions about? Will more DCIS show up on the MRI and therefore should be taken out?

 - though I had asked, and therefore the surgeon's office had asked, for the pathologists to report on division (or proliferation) rate, that was not included in this report so we have to wait for that result. This is the number that we are wanting to go down, which we'll use to help us about the chemo decision.

 - I was going to see my oncologist next week but now need to wait until the following week, when more test results are back.

Overall, I'm feeling fine. I'm back on a (gentle) work schedule, and went to exercise class last night - just doing stretching, non-intensive exercises. Nothing bouncy, thank you! Heading back onto that "normal" path as much as possible.

The words "thank you" seem so small compared to the outpourings of love and concern and prayers and treats - but they are heartfelt. Thank YOU - you are a treasure.




Wednesday, April 6, 2016

Takin' it easy

I'm out on the deck, in the gentle sunshine and grateful for so many things. I'm off the hard meds, not experiencing much pain (even though my breast is one giant purple bruise - lovely!) and a little tired but not overly so.

Surgery day went pretty well. As we were walking out the door, the hospital called and said that my surgery time was moved up. Nice, but I was also secretly doubtful how much earlier it would really be. Checked in at 9am, was taken right back to the short stay area, and did all that basic prep work of hospital gown (sort of a breakaway paper thing, with places for warm or cooling packs), IV, answering questions, etc.

They wheel-chaired me down to radiology so they could put in the wire, blue dye and radioactive material. That radiologist also wanted to look at another "spot" to see if they should biopsy it during surgery but after lots of ultrasound time she decided it just wasn't definitive enough to warrant that.

Then off to mammography where they were to get images of exactly where the wire was (right through the tumor). This part was the longest wait and I think a bit of a blip since it seemed like all the other departments were trying to get me to surgery "earlier" but I sat and waited there for 20 minutes. Finally someone came to do the mammogram and then I waited some more.

By the time I got back to short stay, the surgeon had been there already, assuming I'd be there. The nurse gave me final prep, the anesthesiologist came, and the surgeon came back so we could actually talk. Then off to the OR, just a few minutes before what my original time had been. Of course I don't remember much of that room since after I scooted over to the operating table, they gave me the final knockout drugs.

Jon says the operation was pretty close to the expected 90 minutes. When I woke up, I was super dopey, but the nurses were very attentive and I got ice and water - very welcome indeed.  Some time there, some time back in short stay, and then home - hooray!

The rest of the evening was mostly dozing, a bit of dinner and dozing and sleeping. Slept on the couch with the cat and pretty much slept through the night. And now, as the title of the post says, I'm taking it easy.

Next step is waiting for the pathology report - either end of this week or early next week. Initial report was that the sentinel nodes are clear, so that's good news; means the cancer hasn't traveled anywhere else.

All for now! Thanks so much for standing with me in this :-)


Monday, April 4, 2016

home

The surgery went as expected. Judy's home now, still a bit dopey.

Thanks for your encouragement and prayers.

Jon

Saturday, April 2, 2016

Say what..?!

So I’m in the thick of the ACES (American Copy Editors Society) conference on Thursday, having a great time learning stuff and meeting interesting people, when I get a phone call from the surgeon’s office. The message is that a radiologist at the hospital is raising questions about the (icky!) MRI biopsy which was done to check the other “spots” the original MRI showed. Essentially, that person is saying is they’re not 100% sure the biopsy needle hit the “spot.”  So maybe I want to do another test… Seriously!?!

My surgeon and the original radiologist feel confident with the results, and at this stage of the game, I don’t want to delay the surgery to remove the tumor any longer. This report rattled me, and I’m frustrated that they waited til the eleventh hour to pop up with this. My contact at the surgeon’s office confided that they were frustrated too.

So you can add to your list of prayers for me (already long I know!) that AFTER the surgery there will be a clear path as to what the followup should be, and that for now, I can let it go. [cue song lyrics here :-) ]

Wednesday, March 30, 2016

Prepping for surgery

I talked with a pre-surgery nurse today and watched a couple of their "this is what to expect" videos,  Here's what I know so far:

Night before - take a shower / use clean washcloth and towel / wear clean pjs in a clean sheets bed.

No food or drink after midnight. Not usually a real biggie for me, but one side effect of the anti-estrogen med I'm taking is that it makes me thirsty, so my current norm is to get a drink of water 1/2 way through the night. I have a feeling I'll be REALLY thirsty on surgery day.

April 4 - Surgery Day!
Take another shower / use clean washcloth and towel / wear clean clothes.

9:00am - check in at St. Vincent's Hospital.

All times after this are ESTIMATES, they are careful to keep emphasizing.

Sometime after check-in - go back to short stay unit / Jon can come with

10:30ish - get a wire put into the tumor (since the tumor isn't super large, the wire (a teeny thing) is a clear indicator of exactly where the tumor is). Don't know if Jon comes along - sorta thinking "not."

11:00ish -get nuclear dye put in - this shows which lymph node the tumor drains into; then during surgery, the surgeon will remove the first node the dye reaches (the sentinel node) and send it to be tested. It's a big improvement from the "olden days" when they'd just remove ALL the lymph nodes. Again, don't know if Jon "gets" to come along for this. Back to short stay (with Jon) to wait for...

1:00 - surgery scheduled - they tell you to bring a book and that there's a TV in the room. I anticipate lots of waiting.

Length of surgery - anywhere from 90 minutes to 2 hours - "ish."

Recovery room and then home. Lots of water please!!

Thursday, March 24, 2016

Turning crabbiness into laughter...

Well, that didn't take long.

The day after I got the re-scheduling of the surgery news, I was treated to brunch by a friend who beat breast cancer 17 years ago. I told her that I'm doing some freelance proofreading and copyediting, and she told me of woman she knows who is also doing that, and who is coming to Portland next week for a national copy editors conference.

Cue the light bulb moment!

I had signed up for that conference in January but then had to back out because of my surgery date on March 30th - the conference starts on the 31st. But this new surgery date means I can go to the 3 day conference next week. They were quick to let me re-apply at my initial "early bird" rate and now I'm all set to go. I was just laughing the whole rest of the day.

Quite the lesson I'm getting in trusting God's timing...


Tuesday, March 22, 2016

Surgery Date Changed - and other timing tales...

Got the word from the surgeon's office today that we have to move the surgery date to Monday, April 4th.  It's not that much longer to wait, but I have to admit it makes me a bit crabby. The reason for the change is that the Tanasbourne Surgery Center is "out of network" for our insurance plan, so I'll be having it at St. Vincent's Hospital instead. It will still be on an outpatient basis and I report there at 9:00am.

It just seems so crazy. I'm sure that the costs of doing it at the surgery center instead of the hospital would be significantly less for the insurance company, plus it's run by Providence - the system that both my surgeon and St. Vincent's are a part of. So why...? Who knows.

But there's some amazing timing things that have taken place already so I'm trying to remember those and "possess my soul in patience."

When I was first diagnosed, I was sorting out all the potential treatments and schedules. Carol, my boss at Graceworks, was completely understanding and flexible. I was scheduled for a 2 day workshop with her in Ohio (which took place last week) and I wasn't sure if I could/should do it. I hoped to, but didn't know if it was medically "ok" to wait til after that time (turns out it was) and didn't know if, by waiting, I might compromise my ability to be at my brother's wedding in Florida in June (learned that post-op treatments can flex around that date if need be).

In the meantime of course, Carol was working on backup plans. One trainer (Jen) was already booked for those dates, and the other (Rich) graciously said he would do it, but I knew he'd be giving up some commitments that are near and dear to his heart.

Then the booking for Jen got moved to another date so she was free to step in for the Ohio gig. Interesting. Should she do it instead? Carol said it was up to me. And it turned out that doing ultrasound and MRI to chase down the "spots" were going to take me pretty close to that workshop date anyway, so I said, "Yes, I'll do the Ohio workshop!"

Turns out it was such a good thing I did - for a completely unexpected reason. In my last post, I asked for prayer for one of our trainer's daughters. It was Jen's daughter, and because Jen was home and NOT in Ohio, she was able to shepherd her daughter through all the ER / hospital / "now what?" craziness that ensued for the next several days. Thankfully, her daughter's doing fine now. We are all so glad that Jen was able to be there with her.

But wait - there's more! I had hoped to do the Ohio workshop and then have surgery early this week.  But that didn't work because the surgeon is out of town. And we couldn't do it on next Monday either. Yep, I was crabby about it.

But.... Jen was scheduled to go to San Diego early this week to co-lead a 4-hour workshop and we realized it really didn't make sense for her to get on a plane to go across the country for that, when it would be just as easy for me to do it. And since I wasn't having surgery this week, why not? I just got home tonight from leading a workshop with Carol as part of the N3A conference - North American Airline Audit conference. Lots of different airlines represented - great people! And there was sunshine :-)



Yes, that's the Hotel Del Coronado. And no, the conference wasn't there. Wouldn't that be something!

So that's why I'm trying to be "non-crabby" with this most recent "push out" of the date. Maybe there will be more timing tales to come...

Monday, March 14, 2016

"Spots" are benign!

Literally moments after we had touched down in Columbus, Ohio, and I had taken my phone off airplane mode, I got a call from the radiologist saying that the spots they checked are benign. GREAT news! That means I'll just have a lumpectomy, which can be done as day surgery - March 30.

Super grateful.

A bonus of this trip was that I got to have lunch with Ted and Jeannine Nordlund  in the Minneapolis airport. Funny thing is that there are ZERO restaurants outside of security. So they brought in a lunch and we had a grand old time :-)

Praying friends - please lift up Carson, the daughter of one of our Graceworks' trainers. She fainted several times yesterday and today, including at the ER, and though they are sending her home, my understanding is that they haven't truly isolated the cause.

Two days of workshops here in Ohio - looking forward to it!